Happy Mother’s Day (from a special needs perspective)

If I could be a little girl again and know the things I know now, I would thank my mom a lot more for the sacrifices she made for me when I was growing up. So, for Mother’s Day, I’ve decided to use what I know now to thank her and all the other spina bifida moms I know for things I wasn’t aware of then.

Mom,

Thank you for giving me life when “they” said I’d be better off dead. Thank you for fighting on my behalf when I was too little and weak. Thank you for loving me even though you were scared. Thank you for becoming a nurse in our home long before you were ever a nurse at a hospital. I know that must have been intimidating. Thank you for learning what all those tubes were for, and where they went, and how they helped me. Thank you for countless doctor visits and E.R. visits, no matter what time I needed to go. Thank you for walking up and down the halls of the hospital with me while people gawked. Thank you for your paranoia about every little thing that didn’t seem right. I know sometimes you thought you looked nuts, but I’m sure it kept me alive more than once. Thank you for yelling at doctors when they said, “She’s fine,” when you knew me well enough to know I wasn’t. Thank you for the ugly stares you gave back to people when I was doing my best to learn to walk. Thank you for being patient when other kids my age were running circles around me. I needed more time. Thank you for remembering countless medications, and cath schedules, and putting my AFO’s on for me, and dressing me when it took me a little longer to learn. Thank you for yelling at me when I wouldn’t take care of myself as a teenager (not that it worked…I’m stubborn). Thank you for making me stubborn. I needed that attitude. I don’t know how I would have made it without my pain in the rear attitude. Thank you for pushing me to do everything you knew I could do, and I knew I couldn’t. Turns out, you’re pretty smart. Thank you for letting me do things you were scared of. I know I terrified you sometimes. I had to know if I could ride my bike down that hill at supersonic speed. I could. Fun! Thank you for making me know that I was worthy of love. I never let a boy tell me anything different. There were a lot of worms, but I dropped them all for something I knew I deserved. Thank you for cheering at my graduation. If my doctors had it their way, that day wouldn’t have come, but you believed. Thank you for spending countless hours planning that crazy wedding, yet another thing that wasn’t supposed to happen. And thank you for forks! LOL! Only my mother will get that one! Basically, thank you for stepping into an unfamiliar, scary world, that you didn’t sign up for. I appreciate it, and I think you did a great job! I turned out okay!

Love,

Your SB kid

SB moms…please know that your children feel this way, or at least they will when they look back on their lives and see all you’ve done for them. Take this letter as your own. I wrote it for all of you, from your babies who can’t tell you any of this yet. Happy Mother’s Day!

About Misty

I'm a Christ follower before anything else! I was born with spina bifida. I've heard it called the most devastating, crippling birth defect that is still compatible with life. I have a totally different perspective on that. I'm married to a wonderful man and we are getting ready for some new beginnings! Jump on for the ride!
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14 Responses to Happy Mother’s Day (from a special needs perspective)

  1. fran robinson says:

    do you have any tissues left? I am all out! Thank you Misty.

  2. That was beautiful, misty!

    I bet your mom is so proud of you right now!!!

  3. Lisa Maskus says:

    It is hard to type through all the tears… But that was amazing. I am talking tomorrow at our Spina Bifida walk n roll and I am very nervous, but after reading this I feel a sense of calm and pride. I am where I am because of my sweet son. I couldn’t imagine not having him in my life and I Can only hope that someday my son knows I have and will do anything for him.

  4. Big tears!!! Your mother is a lucky lady. I pray that Annabelle will grow up with these same feelings. Thank you for writing this and for sharing it us.

    Nicole

  5. Vivian Tyson says:

    Misty: Thank you for sharing! Very proud of you.
    Love ya.

  6. Thank you sweet girl! You know… this is spreading like wildfire among the facebook SB moms:)

  7. Sandy McAvoy says:

    Thanks Misty! Made me cry- very beautiful!

  8. Misty,
    That was so beautiful! I hope Raven grows up feeling the same way. <3

  9. Tiffany says:

    Misty… Would you stop making me cry?!?! Great post!!

  10. JoAnn Mullins says:

    Thank you so much! I know your mom is bursting with pride!

  11. Hilary Jabbour says:

    Once again, so beautiful. You have a wonderful way with words. What a gift! Keep on blogging! It blesses my heart so much!

  12. Holly Linden says:

    Hi Misty. My husband printed out this beautiful letter and enclosed it in my Mother’s Day card. Left me in a puddle of tears : ) You are beautiful. I hope you don’t mind that I posted it on my blog @ pushontildawn.blogspot.com Thank you for your precious words.

    Bless you Misty!

    Holly Linden ( SB Mom to Annabelle Linden )

  13. Matthew Vargo says:

    Hi Misty,
    Your mom shared this day’s blog with me and I am grateful to you both, one for writing it and the other for sharing it. I’m on the road to becoming a nurse and I find it inspirational to read your story. I want to become a nurse in order to help heal people, and in a way I want to watch them walk out of the hospital doors under their own steam. I’m glad you found your “steam”, and I think from what your mom has shared with me about your story, she has been your “coal”.
    Cheers,
    Matthew Vargo

  14. Deejae says:

    Misty,
    I love you and am so proud of you!
    You turned out more than okay! All the glory goes to God!
    Mom

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