The Spina Bifida Association of America and other organizations around the world work to help prevent neural tube defects in babies by researching causes and raising awareness. They’ve done amazing things to lower the number of cases of spina bifida. Fewer and fewer babies have to endure what I’ve endured in my lifetime. There is a problem though. The push for folic acid is a good one, but not a 100% fix-it cure. Women are told that as long as they take their folic acid, things will turn out perfect and baby will be fine. That isn’t always true, and with the folic acid campaign being so prevalent, outsiders tend to judge and look down upon parents whose children have SB without just cause. I posted a question on a forum I’m a part of, asking if I could borrow pictures of those children whose mothers were taking folic acid at the time they were conceived. The first 24 pictures are the responses I received in less than 12 hours…the rest were added by request from mothers who wanted their voices heard as well. I will continue to add until the requests stop coming.
In less than 12 hours, I got 24 pictures of children whose mothers took their folic acid and they fell between the cracks. I’m still receiving requests for add ons. There has to be another cause, and we need to find it. All of these women did everything they knew to do. That means there has to be another explanation, and we don’t know everything there is to know. I’ve heard far too many stories of even doctors assuming mothers didn’t take their folic acid because enough research isn’t being done to find other causes. These mothers aren’t to blame. We need to find out why some children fall through the cracks. There is another cause, and we owe it to these children to stop blaming their mothers and find it.